Offices of Rare Diseases Research
The Office of Rare Diseases Research (ORDR) was established in 1993 within the Office of the Director of the National Institutes of Health (NIH), the Federal focal point for biomedical research.
Public Law 107-280, the Rare Diseases Act of 2002, established the ORDR by statute. In 2011, ORDR was integrated into the newly established National Center for Advancing Translational Sciences (NCATS). As an integral part of NCATS, ORDR coordinates and supports rare diseases research, responds to research opportunities for rare diseases, and provides information on rare diseases.
The goals of ORDR are to identify, stimulate, coordinate and support research to respond to the needs of patients who have any one of the approximately 7,000 rare diseases known today. To leverage its resources, ORDR fosters collaboration nationally and internationally.